It's been a while since I wrote, but I guess you could say that I am in a FUNK!!!
Most days I am really optimistic about my MS, but sometimes it just brings me down and I don't know why. I guess one reason is the reactions I get from some of the greediest people in the world telling me how cool their house is with their climate controlled air conditioning for their "things"! I realize this sounds very petty, but I can't afford to have central air and this person keeps his belongings cool and comfortable!
Enough complaining. Just pray that this hot weather goes away for awhile and leaves the 60's for a nice Spring that doesn't affect my legs! That riding chair is looking better everyday!
Wednesday, April 27, 2011
Thursday, April 7, 2011
MS Sucks, but it's not the end of the world! 3
Where do I find a new neurologist?? Do I go to Geisinger? I really don't want to go to Geisinger, but I have no idea where else to go.
In a scheduled appointment with my family Dr., he suggests that I go to Hershey Medical Center where there are a group of neurologists who are supposed to be the best in the state of PA. What do I have to lose? He calls and gets me in to see Dr. Ray Reichwein in Hershey. As soon as I walk in Dr. Reichwein's office with my MRI, he doesn't waste a moment! A classic case of MS!!!!
Immediately he starts me on shots, three times per week, of Rebif, an interferon, which depletes my immune system in an attempt to stop my body from fighting itself! Just what I always wanted to do - give myself shots!!!! I just can't do it, I can't stick a needle in myself, so Russ starts giving me the shots! They hurt like HECK!! Not the needle, but the medicine. It burns and destroys the tissue in my arms or legs or stomach - wherever Russ gives me the shot! I guess this will be my life forever! I did have the where-for-all to get my shots from Tuesday, Thursday and Saturday to Monday, Wednesday and Friday! Now my weekends are free of painful shots!
Mondays come so fast, however!
In a scheduled appointment with my family Dr., he suggests that I go to Hershey Medical Center where there are a group of neurologists who are supposed to be the best in the state of PA. What do I have to lose? He calls and gets me in to see Dr. Ray Reichwein in Hershey. As soon as I walk in Dr. Reichwein's office with my MRI, he doesn't waste a moment! A classic case of MS!!!!
Immediately he starts me on shots, three times per week, of Rebif, an interferon, which depletes my immune system in an attempt to stop my body from fighting itself! Just what I always wanted to do - give myself shots!!!! I just can't do it, I can't stick a needle in myself, so Russ starts giving me the shots! They hurt like HECK!! Not the needle, but the medicine. It burns and destroys the tissue in my arms or legs or stomach - wherever Russ gives me the shot! I guess this will be my life forever! I did have the where-for-all to get my shots from Tuesday, Thursday and Saturday to Monday, Wednesday and Friday! Now my weekends are free of painful shots!
Mondays come so fast, however!
Monday, March 28, 2011
MS Sucks, but it's not the end of the world! 2
I suppose I should start at the beginning of my life with multiple sclerosis.
In 2003, I was working at Susquehanna University as a faculty secretary in the Math and Education Depts. As I was doing my daily routine, I could not hold on to a pen with my right !
After I went for the MRI, I did have spots on my brain and my Dr. said that it was MS and that he would schedule an appointment with the local neuroligist. Needless to say, the Neuroligist put me through every test there was for MS (spinal tap, another MRI, walking tests, etc.). After six months of tests, he still would not diagnose me with MS! Time to change neuroligist???
In 2003, I was working at Susquehanna University as a faculty secretary in the Math and Education Depts. As I was doing my daily routine, I could not hold on to a pen with my right !
After I went for the MRI, I did have spots on my brain and my Dr. said that it was MS and that he would schedule an appointment with the local neuroligist. Needless to say, the Neuroligist put me through every test there was for MS (spinal tap, another MRI, walking tests, etc.). After six months of tests, he still would not diagnose me with MS! Time to change neuroligist???
Thursday, March 24, 2011
MS Sucks, but it's not the end of the world!
On a trip to the Bloomsburg Fair this past year in PA, I was speaking with a gentleman who was a veteran of Vietnam and he and I were discussing a mirage of different items when he asked me why I was walking with a cane! I told him I had Multiple Sclerosis, which was diagnosed in 2003. He said that he was very sorry to hear that and that he knew a man who died from MS in the past year - just what I wanted to hear!!!
I told him that my MS was allowed by God for a reason and that reason was because of my youngest daughter, Amanda, who suffers from anorexia and her father and I were taking care of her 24 hours a day. When I was diagnosed, I told her that I could not take care of her as much anymore, but I had to take care of myself. From that moment on there were a lot of tears and soul searching and now Amanda is a healthy 28 year old with two beautiful daughters!! That was His reason for my MS.
Now he can take it away -- not going to happen unless a cure is found or until I reach my Heavenly Home! I win either way - It is a win-win situation.
This gentleman at the fair said that I should write a book because I had such a positive attitude about my MS. I have never written a book, so I thought a blog was in order. In this blog I will try to tell everyone the positives and the negatives of MS and how we can all have a positive attitude about this devastating disease.
Why complain - who's really going to listen to our probems??? Stay tuned and let me know if this interests you!! God Bless!
I told him that my MS was allowed by God for a reason and that reason was because of my youngest daughter, Amanda, who suffers from anorexia and her father and I were taking care of her 24 hours a day. When I was diagnosed, I told her that I could not take care of her as much anymore, but I had to take care of myself. From that moment on there were a lot of tears and soul searching and now Amanda is a healthy 28 year old with two beautiful daughters!! That was His reason for my MS.
Now he can take it away -- not going to happen unless a cure is found or until I reach my Heavenly Home! I win either way - It is a win-win situation.
This gentleman at the fair said that I should write a book because I had such a positive attitude about my MS. I have never written a book, so I thought a blog was in order. In this blog I will try to tell everyone the positives and the negatives of MS and how we can all have a positive attitude about this devastating disease.
Why complain - who's really going to listen to our probems??? Stay tuned and let me know if this interests you!! God Bless!
Subscribe to:
Comments (Atom)